Article

OBJECTIVE: To assess participation and health-related quality of life in adults
with bilateral spastic cerebral palsy, and explore associations with
self-efficacy. DESIGN: Cross-sectional study. SUBJECTS: A sample of 56 adults
with bilateral spastic cerebral palsy (mean age 36.4 (standard deviation 5.8)
years; 62% male). METHODS: Daily activities and social participation (Life Habits
3.0), health-related quality of life (SF-36 Health Survey), demographic and
clinical characteristics, and self-efficacy (General Self-Efficacy Scale
(GSES-12)) were assessed. Associations were studied using multivariate logistic
regression analyses. RESULTS: At least 60% of the sample had difficulties with
mobility, recreation and housing, and 44% had difficulty with personal care and
employment. They perceived low health-related quality of life for physical
functions, but not for mental functions. Corrected for demographic and clinical
characteristics, general self-efficacy explained 49% of the variance in outcome
on social participation, and the subscale Effort (GSES-12) 32% of the variance
for the physical health-related quality of life and 16% of the mental
health-related quality of life. CONCLUSION: A significant number of adults with
bilateral spastic cerebral palsy encountered difficulties in social participation
and had a low perceived health-related quality of life for physical functions.
Higher general self-efficacy or a greater willingness to expend effort in
achieving behaviour was related to better participation and a higher physical and
mental health-related quality of life.

Langue : ANGLAIS