Article

In the context of the development of the International Classification of
Functioning, Disability and Health (ICF) Core Sets for children and adolescents
with cerebral palsy (CP), we investigated the strengths and limitations in
functioning important to children with CP, through either child self-reports or
caregiver proxy reports, using components of the International Classification of
Functioning, Disability and Health for Children and Youth (ICF-CY). METHOD: We
conducted semi-structured interviews with 10 children with CP (children
self-reporting), 10 caregivers of children self-reporting (10 child-caregiver
dyads), and 12 caregivers of children not self-reporting. Mean age 10y 6mo, range
4-16y. A convenience sample was recruited representing Gross Motor Function
Classification System (GMFCS) levels I to V. Interviews were audio-taped and the
content covered all of the relevant ICF-CY components. The interviews were then
transcribed verbatim and coded in N-Vivo 10 using the ICF-CY coding system.
RESULTS: We identified 1956 themes that linked to 175 ICF-CY categories. Most of
the themes were represented by the ICF-CY components activities and participation
and environmental factors. The children interviewed discussed issues related to
mobility, self-care, and recreation and leisure, whereas the caregivers focused
more on physical limitations and on the environmental factors associated with
everyday activities. INTERPRETATION: The children and their caregivers described
many of the same areas of functioning but provided unique perspectives. Children
talked more frequently about their abilities with CP, whereas the caregivers
interviewed talked more about their concern over the limitations and broader
issues facing their child. The findings highlight the need to explore the
perspectives of both the child and the caregiver when characterizing the
functional profile of children with CP.
CI - (c) 2014 Mac Keith Press.

Langue : ANGLAIS