Article

Community participation is of importance to people with aphasia, who are
at risk of becoming socially isolated. This study investigates the content of
measures of community and social participation for this population by
crosswalking items to the ICF. This will evaluate: (1) to what extent the
included assessments assessed participation only, (2) what content appeared most
frequently and (3) which response formats were utilised.
METHODS: Instruments
were identified from four systematic reviews and a literature search. 111
instruments that were self-reported, developed for adults and published in
English were identified. Items were linked to ICF domains, and third-level
categories of the Activities and Participation chapter. RESULTS: Ninety
instruments (2426 items) were included. Of these, 29 instruments contained over
50% participation items. The most frequently included participation categories in
this subset were education, paid employment, recreation, socialising, being a
carer, relating with friends, family and spouses, volunteer work, managing
finances, community life, civic duties, human rights and religion/spirituality.
Self-care, mobility and domestic life concepts were also frequently reported.
Commonly used response formats were restriction, frequency and satisfaction.
CONCLUSIONS: Few instruments solely assessed participation according to our
operationalisation. This study provides a list of possible measures for use in
assessing participation. Implications for Rehabilitation Participation
restriction, as defined by the International Classification of Functioning,
Disability and Health, is a key concern for people with aphasia. By conducting
the crosswalk, we have identified that self-report measures of participation vary
widely in content and response metrics, and often include activity, body
function, environmental and quality of life items. This review may assist
rehabilitation researchers and clinicians in choosing a measure of participation
restriction for people with aphasia and other populations by listing instruments
with over 50% participation content. These results also indicate that the
construct of participation needs to be adequately and uniformly defined so that
the ICF to be used effectively as a framework for health status measurement.

Langue : ANGLAIS