Article

It is acknowledged in the literature that the physical and cognitive
effects of the degenerative neurological condition of multiple sclerosis can
impact upon driver safety. The aim of this study was to identify the experiences
and needs of people with multiple sclerosis in relation to driver assessment and
rehabilitation. METHODS: Focus group discussions were conducted with people with
multiple sclerosis (MS) who were: currently driving; no longer licensed or no
longer driving and health professionals. RESULTS: The four themes that emerged
from the data were: (1) from self-management to formal assessment - a journey of
uncertainty and emotional dilemmas; (2) lost independence with grieving and
adjustment by self and family; (3) alternative transport is challenging and
unsatisfactory; (4) gaps in information and services exist. CONCLUSIONS: The
results of this study highlight the need for ongoing support in relation to
driving for people with MS, ranging from support for self-management, driving
assessment and retraining, and preparation for loss of license. Standardised
information needs to be developed and health professionals and licensing
authorities require knowledge and skills to ensure driver assessment and
rehabilitation processes and resources can better meet the needs of people with
MS. IMPLICATIONS FOR REHABILITATION: There is a need for health professionals to
examine driving in people with MS in a holistic manner taking into account the
context for the person and the supports available. Self-management and
self-assessment emerged as a preferred approach for the participants in this
study, indicating that health professionals may need to engage with the process.
Tools to support self-assessment of driving abilities for people with MS require
further research. Indicators for review and formal assessment of driving
abilities is needed. Alternative forms of transport require further investigation
and improvement for people with MS.

Langue : ANGLAIS