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Validation of the Caregiver Priorities and Child Health Index of Life with
Disabilities (CPCHILD) in a sample of Dutch non-ambulatory children with cerebral palsy

PURPOSE: To assess the reliability and validity of the Caregiver Priorities and
Child Health Index of Life with Disabilities (CPCHILD)-Dutch Version, a proxy
measure of health status and well-being of non-ambulatory children with cerebral
palsy (CP). METHODS: Parents (n = 66) of 47 boys/19 girls between 5 and 18 years
with CP (GMFCS IV-V) participated. To assess the reliability each domain and the
total measure was tested for internal consistency, test-retest and inter-rater
reliability. Known-groups validity of the CPCHILD-DV was assessed by comparing
mean scores of clinically distinct subgroups and convergent validity by
correlating the CPCHILD-DV with the TNO-AZL Preschool Children Quality of Life
(TAPQOL). RESULTS: The mean CPCHILD-DV total score was 52.0 (SD11.5). Test-retest
reliability of the total score as assessed by intraclass correlations (ICC) was
0.73 (domains: 0.55-0.80). For the inter-rater reliability the ICC was 0.64
(domains: 0.58-0.90); the Cronbach's alpha's ranged from 0.60 to 0.95. The
CPCHILD score could differentiate between GMFCS levels and between subgroups of
cognitive level in the domain "communication and social interaction". There were
moderate significant correlations (range r(s): 0.31-0.50) between sections of
CPCHILD-DV and TAPQOL. CONCLUSIONS: The CPCHILD-DV has sufficient reliability and
validity as a proxy measure of health status and well-being of non-ambulatory
children with CP.

Langue : ANGLAIS

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