Article

Neurogenic bladder and bowel (NBB) is a chronic condition hindering the
functioning and quality of life (QOL) of people with spinal cord injury (SCI).
NBB research has focused on men with SCI leaving unanswered questions about
women's experiences of living with NBB. The purpose of this study was to identify
and describe women's experiences of living with SCI and NBB. METHOD: Secondary
analysis of semi-structured interviews from a larger qualitative study of women
with SCI (N = 50) was carried out. Transcripts were coded for bowel and bladder
content. Pile-sorting techniques were used to identify emergent themes related to
NBB. Meta-themes were categorized under the International Classification of
Functioning, Disability and Health. RESULTS: Bladder and bowel topics were
spontaneously discussed by 46 out of 50 study participants suggesting the
salience of this issue for women with SCI. We identified 6 meta-themes: life
controlled by bladder and bowel, bladder and bowel accidents, women's specific
challenges, life course disruption, bladder and bowel medical management, and
finding independence. CONCLUSIONS: Findings describe concerns, strategies, and
the detrimental impact of NBB in the lives of women with SCI. Findings inform
policy makers, health care and rehabilitation professionals to improve
accessibility and quality of life for women with NBB. Implications for
Rehabilitation Women with spinal cord injury (SCI) reported gender specific
challenges to living with neurogenic bladder and bowel (NBB). Interventions
designed for women with SCI can address these problems and provide
recommendations for prevention and treatment. Women described the detrimental
impact of NBB on life course expectations, emotional, social, physical health,
and quality of life domains. Psychosocial and educational programs can be
developed to address these challenges and improve overall quality of life.
Recommendations for special treatment and policy considerations are needed to
maximize women's independence and health while living with NBB after SCI.

Langue : ANGLAIS