Article

The overall objective of this study was to illustrate a systematic
approach for capturing the psychologic-personal perspective in International
Classification of Functioning, Disability and Health-based comprehensive research
on spinal cord injury (SCI) in terms of what and how to measure. The specific
aims were to identify (1) relevant areas of research for capturing the
psychologic-personal factors in a study that is planned and conceptualized
according to the comprehensive context of the International Classification of
Functioning, Disability and Health, using SCI as a case in point; (2) a set of
domains relevant for SCI research from a psychologic-personal perspective; and
(3) suitable measurement instruments that can be considered for the assessment of
those identified domains based on a set of predefined guiding principles. DESIGN:
The psychologic-personal factor structure was developed based on an item pool of
1246 entries from secondary analyses of available data from SCI studies. The
domain set for psychologic-personal factors was identified through reviewing the
scientific literature in PubMed and PsycInfo. The set of measurement instruments
was collected using available measurement reviews, searches in the literature,
instrument databases, and further sources and was selected using guiding
principles. RESULTS: Forty specific psychologic-personal factors, subdivided into
seven areas of research, were identified: (1) sociodemographic personal
characteristics, (2) the position in the immediate social and physical context,
(3) personal history and biography, (4) feelings, (5) thoughts and beliefs, (6)
motives, and (7) patterns of experience and behavior. The psychologic-personal
factors domain set contains both cross-cutting outcome domains, namely
quality-of-life, life satisfaction, subjective well-being, and sociodemographic
personal characteristics, life events, positive and negative affect, perceived
stress, locus of control, self-efficacy, purpose in life, coping, lifestyle, and
personality. For each of the identified domains, a pool of measurement
instruments was listed, and the application of predefined guiding principles for
measurement instrument selection was exemplified for self-efficacy. It resulted
in the selection of the General Self-Efficacy Scale by Schwarzer and Jerusalem
(Measures in Health Psychology: A User's Portfolio. Causal and Control Beliefs.
pp. 35-37; 1995). CONCLUSIONS: The results of the current article contributed to
creating a transparent protocol for the Swiss Spinal Cord Injury Cohort study,
coordinated by the Swiss Paraplegic Research in Nottwil, Switzerland. This
article also stresses the relevance of the comprehensive approach to SCI and the
consideration of the psychologic-personal perspective in this approach. The
study, therefore, hopes to encourage scientists to use the International
Classification of Functioning, Disability and Health and the psychologic-personal
perspective as a frame of reference for their research. Furthermore, the research
reported in this article can inform the World Health Organization's future
development of the personal factors classification in the International
Classification of Functioning, Disability and Health.

Langue : ANGLAIS