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A comparative review of measurement instruments to inform and evaluate effectiveness of disability inclusive development

A review of existing measurement instruments was conducted to examine
their suitability to measure disability prevalence and assess quality of life,
protection of disability rights and community participation by people with
disabilities, specifically within the context of development programs in low and
middle-income countries. METHODS: From a search of PubMed and the grey
literature, potentially relevant measurement instruments were identified and
examined for their content and psychometric properties, where possible. Criteria
for inclusion were: based on the WHO's International Classification of
Functioning Disability and Health (ICF), used quantitative methods, suitable for
population-based studies of disability inclusive development in English and
published after 1990. Characteristics of existing instruments were analysed
according to components of the ICF and quality of life domains. RESULTS: Ten
instruments were identified and reviewed according to the criteria listed above.
Each version of instruments was analysed separately. Only three instruments
included a component on quality of life. Domains from the ICF that were addressed
by some but not all instruments included the environment, technology and
communication. CONCLUSION: The measurement instruments reviewed covered the range
of elements required to measure disability-inclusion within development contexts.
However no single measurement instrument has the capacity to measure both
disability prevalence and changes in quality of life according to contemporary
disability paradigms. The review of measurement instruments supports the need for
developing an instrument specifically intended to measure disability inclusive
practice within development programs. Implications for Rehabilitation Surveys and
tools are needed to plan disability inclusive development. Existing measurement
tools to determine prevalence of disability, wellbeing, rights and access to the
community were reviewed. No single validated tool exists for population-based
studies, uses quantitative methods and the components of the ICF to measure
prevalence of disability, well-being of people with disability and their access
to their communities. A measurement tool that reflects the UNCRPD and addresses
all components of the ICF is needed to assist in disability inclusive
development, especially in low and mid resource countries.

Langue : ANGLAIS

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