Article

PURPOSE: To manage social roles is a challenging part of self-management
post-stroke. This study explored how stroke survivors act as role managers with
their spouses in the context of everyday activities. METHOD: Two stroke survivors
with a first time stroke living at home with a spouse were included. Data were
generated through participant observations at their own environment at 3, 6, 9,
15 and 21 months post-discharge. The narrative analysis focused on the actions of
participants. RESULTS: Daily activities can be understood as an arena where role
management and a meaningful live is negotiated and co-constructed with others.
Everyday activities gave stroke survivors and their spouses insight into stroke
survivors' capacities in daily situations. This was sometimes empowering, and
other times conflicting when a spouse had negative perceptions of the abilities
of the stroke survivors. CONCLUSION:
The findings add to the current
understanding of self-management and role management with regard to how these are
situated in everyday activities. Daily activities can help both spouses to
reflect and understand about self-management, role management and comanagement in
daily life. Moreover, observing stroke survivors in everyday situations provides
professionals with concrete pictures of stroke survivors' performance and
self-management in interaction with their spouses. Implications for
Rehabilitation Self-management is a dynamic process in which individuals actively
manage a chronic condition and finally live a meaningful life with a long-term
chronic condition; self-management can be divided into medical, role, and
emotional management; comanagement is when individuals activate resources and use
the capacities of other persons to manage a situation together. Self-management
is situated in everyday activities. Everyday activities give stroke survivors and
their partners impressions about stroke survivors' self-management abilities
post-stroke in an everyday context. Everyday activities give stroke survivors and
their partners an arena where role management and a meaningful life are
negotiated and coconstructed through doing. Observing stroke survivors in
everyday situations provides professionals a concreter picture of stroke
survivors' self-management and comanagement with their partners than can be
obtained from an informal interview.

Langue : ANGLAIS