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Cognitive support technologies for people with TBI : current usage and challenges experienced

We investigated the current use of off-the-shelf cognitive support
technologies (CSTs) by individuals with traumatic brain injury (TBI), the
challenges they and their caregivers face when using these technologies, the
functional areas where support is needed, and their current experience in
learning new technologies. METHOD: We conducted two focus groups with
participants with TBI and their caregivers. Focus group interactions were
captured using recordings and a court reporter. Transcripts were analyzed
qualitatively. RESULTS: We identified three core themes - consumer and caregiver
self-reported needs for support, how support is used on a daily basis and
consumer and caregiver attitudes towards the use of support by types of support.
We also inferred implications for design of CSTs. CONCLUSIONS: Individuals with
TBI use consumer available technologies to support cognition. The design of most
of these devices is not targeted to meet the needs of people with TBI, and they
can be challenging to use independently, but individuals and their caregivers
still benefit from their use by embedding technology as one type of support
within a broader support network that includes personal assistance. IMPLICATIONS
FOR REHABILITATION: People with traumatic brain injury (TBI) are attempting to
use a wide range of consumer available technologies to support cognition,
although not always successfully. One important role for rehabilitation providers
could be helping people with TBI use these technologies with more accuracy and
success. People with TBI note that an important element in adopting new
technology is good training in its use. Cognitive support technologies (CSTs) are
one part of broader network of supports. People with TBI and their caregivers
desire independence but do not want to lose the human element that can be
provided by a caregiver. New technologies should be implemented with an
understanding of an individual's broader support network. Psychosocial aspects of
TBI need to be considered when designing and implementing CSTs. In particular,
rehabilitation providers need to address the anxiety that many people with TBI
experience, including fear about forgetting and their need for early, repeated
reminders so they can prepare for upcoming events.

Langue : ANGLAIS

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