Article

AIMS: To pilot prospective data collection by paediatricians at the point of care
across England using a defined terminology set; demonstrate feasibility of data
collection and utility of data outputs; and confirm that counting the number of
needs per child is valid for quantifying complexity.
METHOD: Paediatricians in 16
hospital and community settings collected and anonymized data. Participants
completed a survey regarding the process. Data were analysed using R version
3.1.2. RESULTS: Overall, 8117 needs captured from 1224 consultations were
recorded. Sixteen clinicians responded positively about the process and utility
of data collection. The sum of needs varied significantly (p<0.01) by level of
gross motor function ascertained using the Gross Motor Function Classification
System for children with cerebral palsy; epilepsy severity as defined by level of
expertise required to manage it; and by severity of intellectual disability.
INTERPRETATION: Prospective data collection at the point of clinical care proved
possible without disrupting clinics, even for those with the most complex needs,
and took the least time when done electronically.
Counting the number of needs
was easy to do, and quantified complexity in a way that informed clinical care
for individuals and related directly to validated scales of functioning. Data
outputs could inform more appropriate design and commissioning of quality
services.
CI - (c) 2016 Mac Keith Press.

Langue : ANGLAIS