Article

The purpose of this study was to examine the experience of participating
in a community-based fatigue management programme for people with multiple
sclerosis (MS). METHOD: Eight people with MS who participated in an 8-week
community-based fatigue management programme were interviewed using a
semi-structured, open-ended interview protocol. Data were analysed using constant
comparative analysis informed by a phenomenological perspective. RESULTS:
Participants experienced ownership, active participation and empowerment.
Participants' fatigue was legitimised and validated, and participants described a
shared experience and shared voice. Outcomes identified by participants included:
lifestyle and occupational changes, altered thinking about fatigue and the
development of social supports. CONCLUSION: Participants' experience of the
community-based fatigue management programme was described in positive terms with
unanticipated benefits and outcomes described.

Langue : ANGLAIS