Article

This study explored differences in perspectives on quality of life (QOL) between
people affected by amyotrophic lateral sclerosis (ALS) and their caregivers. QOL
is often thought of as related to physical limitations, without consideration of
other factors (e.g., cognitive, emotional) that may be stronger predictors of QOL
in people with long-term degenerative diseases. Because QOL is complex and
influenced by multiple factors, people with ALS and their caregivers may have
different perspectives on what constitutes QOL. This study investigated potential
discrepancies in QOL perspectives between people with ALS and their caregivers.
Thirty dyads from the Augusta University Health ALS Clinic completed a measure of
QOL, and we compared the results and identified patterns. The most prominent
finding was that members of the dyads misunderstood the mental experiences of one
another.
CI - Copyright (c) 2017 by the American Occupational Therapy Association, Inc.

Langue : ANGLAIS