Article

Contemporary rehabilitation literature emphasises functional goals for children
with disabilities and use of a collaborative goal-setting process grounded in
principles of family centred service delivery. PURPOSE: To explore parents'
experiences with goals and goal setting. We conducted a qualitative study
with 11 focus groups and two individual interviews with 39 parents of children
with cerebral palsy living in western Canada. We used an inductive, thematic
analysis to identify prominent themes. The analysis revealed five themes
representing goals that were meaningful to parents and provided insight into
parents' experiences with goal-setting processes in occupational and physical
therapy: (1) movement as the means to functional success; (2) physical health and
fitness are important therapy goals; (3) the importance of leading happy,
fulfilling lives and being accepted by others; (4) 'We can't do it all':
balancing therapy with the demands of everyday life; and (5) shifting roles and
responsibilities in goal setting. CONCLUSIONS: The variability noted both in
parents' desired role in goal setting and in goals important to parents
highlights the importance of establishing trusting relationships with families so
that family goals, values, individual circumstances, and desired level of
participation in goal setting can be openly discussed.

Langue : ANGLAIS