Article

OBJECTIVE: To report on a cognitive testing study on newly constructed items
designed to evaluate client-reported outcomes of activity performance and
participation after spinal cord injury (SCI). METHOD: Thirty-three children with
SCI and 13 caregivers participated in cognitive testing interviews. Open-ended
questions were used to gain a better understanding of activity performance and
participation. The interviews were transcribed verbatim. A thematic analysis was
carried out independently by 2 researchers, and key sentences and phrases from
both analyses were merged. RESULTS: Four themes were defined: (1) apprehension
related to activity performance and participation, (2) reference point, (3)
missing out, and (4) autonomy. CONCLUSION: Insight into children's and
caregivers' perspectives provided important information that helped refine the
wording of test items and response scales. The theme of autonomy provided a
stronger catalyst to solidify items for both child- and parent-reported outcomes.
This study further validated the complexity of the construct of participation.

Langue : ANGLAIS