Article

OBJECTIVES: To evaluate: (1) whether instruments which intend to measure
participation actually do and (2) how frequently specific aspects and domains of
participation are addressed. DATA SOURCES: A systematic search was performed in
PubMed. STUDY SELECTION: Included were patient-reported instruments that
primarily aim to measure participation. DATA EXTRACTION: The full-text
instruments were extracted from the articles or obtained from the authors. Two
reviewers independently rated each item of the included instruments as measuring
participation (yes, no, or undetermined). For each item, the specific aspect and
domain of participation were categorized. DATA SYNTHESIS: Included were 103
instruments (2445 items). Of the included items, 619 items concerned
participation and 217 concerned undetermined items. In total, 68 instruments
contained at least 1 (sub)scale with 50% or more participation or undetermined
items. The participation items referred to the participation aspects:
participation problems (53%), participation accomplishment (31%), and
satisfaction with participation (9%). The domains of the participation items
concerned: work/study (27%), social life (27%), general participation (19%), and
home (11%). The undetermined items mainly referred to domains about leisure
(43%), transport (26%), and shopping (12%). CONCLUSIONS: According to our working
definition of participation, most instruments that aim to measure participation
do so only to a limited extent. These instruments mainly assess aspects of
participation problems and participation accomplishment. The domains of
participation covered by these instruments primarily include work/study, social
life, general participation, home, leisure, transport, and shopping.
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Langue : ANGLAIS