Article

OBJECTIVES: To describe participation and health-related quality of life of Dutch
children and adolescents with congenital lower limb deficiencies in comparison
with typically developing children, and to explore differences between various
degrees of limb loss and between parental reports and self-reports on
health-related quality of life. DESIGN: Cross-sectional study. METHODS:
Participation was assessed with the Children's Assessment of Participation and
Enjoyment questionnaire, and health-related quality of life with the KIDSCREEN-52
questionnaire, both as parental reports and self-reports, for 56 children and
adolescents with congenital lower limb deficiencies, aged 8-18 years. RESULTS:
Participation and health-related quality of life of children and adolescents with
lower limb deficiencies (age range 8-18 years) did not differ from those of the
reference group, except that the adolescents with lower limb deficiencies (age
range 12-18 years) reported significantly (p < 0.05) less diversity and lower
intensity of social and skill-based activities. Degree of limb loss did not
affect participation or health-related quality of life. Differences (p < 0.05)
between parental reports and self-reports for health-related quality of life were
found for the "physical well-being", "moods and emotions" and "self-perception"
domains. While parental reports were comparable to the adolescents' self-ratings,
parents reported lower health-related quality of life in the "moods and
emotions", "self-perception" and "autonomy" domains for their younger children.
CONCLUSION: While the participation and perceived health-related quality of life
of Dutch children with lower limb deficiencies do not differ from those among
typically developing children, the participation of adolescents with lower limb
deficiencies is characterized by less diversity, with less interaction in social
and skill-based activities.
Pays Bas

Langue : ANGLAIS