Article

OBJECTIVE: To investigate satisfaction with respite care, the well-being of
informal caregivers and patients with acquired brain injury (ABI) who receive
respite care by day-care activity centers, and factors related to caregiver
well-being. DESIGN: Cross-sectional cohort study.
SETTING: Adult day-care
activity centers. PARTICIPANTS: A sample of caregivers and patients (N=108) with
ABI (mean of 8y since injury) enrolled in 1 of 7 day-care activity centers. The
sample consisted predominantly (70%) of stroke patients. INTERVENTION: Respite
care by adult day-care activity centers. MAIN OUTCOME MEASURES: Well-being was
defined in terms of life satisfaction (Life Satisfaction Questionnaire
[LiSat-9]), emotional functioning (Hospital Anxiety and Depression Scale [HADS]),
and caregiver burden (Caregiver Strain Index [CSI]). Factors related to
well-being were personal, injury related, and psychological. RESULTS:
Satisfaction with day-care activity center care was high for caregivers (7.8) and
patients (8.1). Caregiver satisfaction with care was unrelated to caregiver
well-being. Most caregivers (61%) showed low life satisfaction and high
subjective burden (69%), and 33% of caregivers and 42% of the patients reported
depressive symptoms. Caregiver well-being was positively correlated with a high
sense of mastery of caregivers and patients and low passive coping of the patient
(LiSat-9 R(2)=.32; HADS R(2)=.55; CSI R(2)=.35). CONCLUSIONS: This study
emphasizes the need for care for both caregivers and patients in the chronic
phase after ABI. Although respite care is highly appreciated, it is not
sufficient for caregivers to attain a healthy level of well-being. Results
indicate that caregiver well-being might improve by targeting passive coping and
mastery skills of caregivers and patients. Continuous support for both caregivers
and patients is needed.
CI - Copyright (c) 2012 American Congress of Rehabilitation Medicine. Published by
Elsevier Inc. All rights reserved.

Langue : ANGLAIS