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The impact of switching on family caregivers of children with cerebral palsy

NICOLSON RI; MOIR E; MILLSTEED J
DISABIL REHABIL ASSIST TECHNOL , 2013, vol. 8, n° 2, p. 169-175
Doc n°: 161711
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.3109/17483107.2012.692172
Descripteurs : AJ23 - PARALYSIE CEREBRALE, JL13 - HANDICAP ET FAMILLE

This study aimed to enhance our knowledge and understanding of
switching, as assistive technology, and how it impacts on family caregivers of
children with cerebral palsy with GMFCS levels four or five. METHODS: A
qualitative method using a constructivist approach was adopted. Purposive
sampling was used to recruit five caregivers to participants in this study.
Framework analysis was applied to the data collection of semistructured
interviews conducted with each caregiver. FINDINGS: The three main themes
identified were an investment in the future, resulting in joy and hope. The
learning process of switching is resource intensive, time consuming and effortful
for caregivers. If caregivers do not perceive this as an investment, then they
may not experience the joy switching can bring to their child, and in turn the
joy, hope, and caregiver satisfaction it can offer for the future. CONCLUSION:
This research indicates that caregivers often have the greatest impact on whether
switching will be adopted in the home. The greatest impact on caregivers is
related to their perception on the competence of therapists and coordination of
services provided.

Langue : ANGLAIS

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