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Looking to the future : adolescents with cerebral palsy talk about their aspirations - a narrative study

CUSSEN A; HOWIE DW; IMMS C
DISABIL REHABIL , 2012, vol. 34, n° 24, p. 2103-2110
Doc n°: 162096
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.3109/09638288.2012.672540
Descripteurs : AJ23 - PARALYSIE CEREBRALE, JN -DEVENIR - HANDICAP

PURPOSE: To explore the future hopes and aspirations of adolescents with cerebral
palsy (CP) with a particular focus on their reflections on engagement in leisure
activities. METHOD: This qualitative study used narrative inquiry methodology.
Ten adolescents, aged 14-16 years with CP and Manual Ability Classification
System levels ranging from I-IV, were purposively sampled from a longitudinal
study of leisure participation. Data were gathered during two face-face
interviews conducted approximately 1 month apart. Between interviews, photographs
were taken by the adolescents to represent their visions of their future
aspirations. In accordance with narrative inquiry methodology, the results were
presented as individual stories constructed by the researcher. These narratives
were subsequently analysed to produce themes representing the participants'
reflections on their future. RESULTS: Three themes were developed: (i) Keeping
close relationships, (ii) Choosing a future life of one's own, (iii) Leisure in
the years ahead. All the adolescents had aspirations for education, work, leisure
and living situation. CONCLUSION: This study highlights the value of seeking
information from adolescents with CP and suggests clinicians be aware of, and
work to support their expectations for future study, employment and recreational
engagement.

Langue : ANGLAIS

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