Article

This study used a mixed-methods approach with questionnaires and semistructured
interviews to explore the views and experiences of people with neuromuscular
conditions who use powered mobile arm supports (PMASs). All 170 users of PMASs
who had neuromuscular conditions and lived within 200 mi of the study center were
contacted by post. Of the 22 who expressed an interest, 13, aged 13 to 69 yr,
took part. Participants had been using the PMAS from 6 mo to 8 yr, and the
majority had Duchenne muscular dystrophy. Interviews took place in participants'
homes or by telephone, and participants completed the ABILHAND and the Upper-Limb
Functional Index and provided details regarding their diagnosis and experience
with the PMAS. Themes that emerged were the positive influence of PMASs on
psychological factors and social participation; increased range of and
independence in several activities, including eating, drinking, and exercise;
variations in funding and time taken for provision; participants' initial
reactions; timing of initial use; reasons for nonuse; and suggestions for future
development. We concluded that, in this group, PMASs improved confidence,
dignity, and the ability to engage in social situations, as well as increased
independence in several activities. The majority of negative aspects of use would
be amenable to change.

Langue : ANGLAIS