Article

PURPOSE: To determine the role, in clinical practice and measurement of outcomes
of upper limb interventions, of cerebral palsy-specific self- or parent-report
measures of upper limb performance in everyday activities. METHOD: Search of
databases and handsearching for information on test development procedures,
psychometric properties or relevant studies to inform study objectives. RESULTS:
Children's Hand-use Experience Questionnaire holds most promise for guiding
treatment planning but requires more psychometric evidence. ABILHAND-Kids has the
strongest evidence for reliability, validity and sensitivity to change; evaluates
impact of intervention on bimanual performance and can be used for children with
unilateral or bilateral cerebral palsy. The original and revised versions of the
Pediatric Motor Activity Log (PMAL) evaluate unilateral rather than bimanual
upper limb performance. Neither ABILHAND-Kids nor PMAL offer information to
assist treatment planning. PMAL-R is the only measure for the 2-5-year age group.
No measure was adequate for children younger than 2 years to ascertain parents'
perception of upper limb function in everyday activities. CONCLUSIONS:
Understanding upper limb performance in everyday life, as perceived by children
with cerebral palsy and their families, informs a comprehensive assessment and
acknowledges the importance of the perspectives of child and family. Implications
for Rehabilitation Cerebral palsy-specific self- or parent-report measures of
upper limb performance in everyday life complement observational assessments in
understanding upper limb performance CHEQ provides clinical information,
ABILHAND-Kids is validated for children with unilateral and bilateral cerebral
palsy and possesses the most robust psychometric properties, Revised PMAL
measures unilateral upper limb use. No adequate measure for children under 2
years exists.

Langue : ANGLAIS