Article

Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis
(CFS/ME), has a significant impact upon daily functioning. Most recommended
treatments aim to alter activity patterns based upon assumptions of activity
avoidance. However, as there is limited research on the experience of activity
and occupational beliefs in people with CFS/ME,
this study took a qualitative
approach to understand the meaning of activity in people with this disabling
condition. METHOD: This study applied a social constructivist grounded theory
methodology. Semi-structured interviews took place with 14 participants attending
a Specialist CFS/ME Service in England. FINDINGS: The emergent themes described a
premorbid state of constant action with difficulty stopping an activity once it
had commenced. When this pattern was interrupted by illness, participants
attempted to maintain their previous level of occupational engagement. Negative
associations and emotions were described in response to the concept of doing
nothing or limited activity. A recurring cycle was reported of increasing
activity levels when symptoms improved, followed by post exertional symptoms.
CONCLUSIONS: Consequently, participants' beliefs about concepts of both activity
and inactivity need to be considered within the application of rehabilitation
programmes for CFS/ME that aim to modify activity related behaviours.
IMPLICATIONS FOR REHABILITATION: Chronic fatigue syndrome/myalgic
encephalomyelitis (CFS/ME) is commonly treated in the UK using activity
modification. In this small qualitative study, patients expressed negative
feelings and beliefs towards the concept of doing nothing and therefore sought to
push their activity levels when this was available, leading to recurring cycles
of symptoms and activity. Rehabilitation programmes need to consider how people
with CFS/ME engaged with activity and inactivity before the condition and how
this may impact upon engagement with activity-based rehabilitation programmes.

Langue : ANGLAIS