Article

OBJECTIVE: To gain greater insight into the lived experience of individuals with
spinal cord injury (SCI) and neurogenic bowel dysfunction (NBD). DESIGN:
Qualitative (phenomenologic) interviews and analysis.
SETTING: Community.
PARTICIPANTS: Individuals with SCI and NBD (N=19) residing in the community.
INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURE: Concerns related to living
with NBD after SCI. RESULTS: Challenges related to living with SCI and NBD
included costs and requirements, emotional impact, diet, education and
employment, intimacy and interpersonal relations, social participation,
spontaneity and daily schedule, travel, lack of appropriate and consistent
assistance, loss of autonomy (independence, privacy), lack of predictability and
fear of incontinence, medical complications, pain or discomfort, physical effort
of the bowel routine, physical experience, and time requirements. CONCLUSIONS:
Living with NBD presents many challenges. When categorized according to the
International Classification of Functioning, Disability and Health, identified
domains include body functions and structures, activity, participation,
environmental factors, and personal factors. Identified issues have implications
for improving clinical management and should be assessed when determining the
impact and efficacy of interventions.
CI - Copyright (c) 2015 American Congress of Rehabilitation Medicine. Published by
Elsevier Inc. All rights reserved.

Langue : ANGLAIS