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Important elements of measuring participation for children who need or use power mobility : a modified Delphi survey

FIELD DA; MILLER WC; JARUS T; RYAN SE; ROXBOROUGH L
DEV MED CHILD NEUROL , 2015, vol. 57, n° 6, p. 556-563
Doc n°: 174859
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.1111/dmcn.12645
Descripteurs : AJ1 - ETUDES GENERALES - NEUROLOGIE INFANTILE

AIM: To identify and reach consensus on important elements of measuring
participation in everyday life for children who need or use power mobility.
METHOD: A panel (n=74) of parents, therapists, and researchers with pediatric
power mobility and participation expertise completed an online modified Delphi
survey. Three rounds determined important elements of participation for two
groups: early childhood (18mo-5y) and school-aged (6-12y). 'Elements of
participation' defined the 'who, what, where, and how' of measuring
participation, generated from a literature review and participants' suggestions.
Consensus was set a priori as >/=80% agreement. RESULTS: Consensus was reached on
21 out of 48 elements of participation important to measure for our population:
eight elements for the younger group and 18 elements for the older group. When
ranked by importance, four of the top five elements were common across both age
groups. INTERPRETATION: For children using power mobility, measuring
participation in a variety of settings is critical, along with considering both
the child's and family's participation. Evaluating child engagement and enjoyment
of participation are priorities, as is measuring barriers and facilitators. For
school-aged children, evaluating child and parent reports of participation are
essential. These elements can guide tool selection and/or development.
CI - (c) 2014 Mac Keith Press.

Langue : ANGLAIS

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