Article

The study aimed to examine and compare the content of the quality of
life in short-stature youth questionnaire (QoLISSY) with the International
Classification of Functioning, Disability and Health - Children and Youth (ICF-CY).
METHODS: Items of the QoLISSY questionnaire for children/adolescents
and their parents were coded within the framework of the ICF-CY. Linkage was
performed according to predetermined standards by two health professionals
experienced in the conceptual fundaments of the ICF-CY. RESULTS: Within the
linking process 58 meaningful concepts were identified from the 55 items out of
the QoLISSY parent questionnaire and 55 meaningful concepts from the 50 items of
the QoLISSY (children) questionnaire. In total, 57 concepts
(parent-questionnaire) and 54 concepts (children-questionnaire) were linked to
the different categories of the ICF-CY. Twenty-seven categories (parents-version)
and 20 categories (child-version) referred to the component body functions, 34
categories (parent-version) and 30 categories (child-version) represented the
activity and participation component and in each version 30 categories
represented the environmental factors component. CONCLUSIONS:
The present study
indicates that the ICF-CY provides a useful frame of reference to compare and
examine the content of HrQoL instruments for short-statured children and
adolescents and their parents. The linkage of the QoLISSY instrument within the
framework of the ICF-CY translates its content into a universal language.

Langue : ANGLAIS