Article

The aim of this study was to evaluate changes in caregivers' perceptions of
health-related quality of life (HRQOL) and caregiver impact in children with
severe, non-ambulatory cerebral palsy after orthopedic surgery to correct hip or
spine deformities. METHOD:
A prospective longitudinal cohort study (n=44) design
was used to measure changes before and after surgery. Caregivers completed the
Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)
and the Assessment of Caregiver Experience with Neuromuscular Disease (ACEND).
Data collection was between February 2011 and February 2014. Caregivers were
included if their child was 3 to 25 years old, had cerebral palsy in Gross Motor
Function Classification System levels IV and V, and was scheduled for orthopedic
surgery. Analysis of variance with repeated measures was used to assess changes
before and at four time points after surgery. RESULTS: Forty-four caregivers
participated. Caregivers' perceptions of their child's HRQOL demonstrated an
improvement from baseline to 12 months (p<0.001). Patients who had spine surgery
demonstrated a steady improvement over time, whereas patients who had hip surgery
had a decrease at 6 weeks followed by steady improvement. Improvements were noted
in five of six of the CPCHILD domains, with no changes in the quality of life
domain. No changes were noted in any of the ACEND domains. INTERPRETATION:
Caregivers report an improvement in a variety of domains of HRQOL 1 year after
orthopedic surgery.
CI - (c) 2015 Mac Keith Press.

Langue : ANGLAIS