Article

AIM: To assess completeness and correctness of cerebral palsy (CP) diagnoses in
the Cerebral Palsy Register of Norway (CPRN) and the Norwegian Patient Register
(NPR), and to estimate CP prevalence. METHOD: Among 747 883 Norwegian residents
born from 1996 to 2007, 2231 had a diagnosis of CP in the NPR while 1441 were
registered in the CPRN. Children registered in the CPRN were considered to have a
valid CP diagnosis. For those with a diagnosis of CP only in the NPR, two
paediatricians reviewed the hospital records. The prevalence rate of CP with 95%
confidence intervals (CI) was calculated on the basis of the combined data sets.
RESULTS: One thousand three hundred and ninety-eight children were registered
with a diagnosis of CP in both registers, 43 children were only registered in the
CPRN, and 824 only in the NPR. The review of hospital records revealed that 464
(59.5%) had CP. Thus, the NPR was 98% complete, and for 86% the diagnosis was
correct. The completeness of the CPRN was 76%, while the diagnosis was considered
correct for all children (100%). The resulting prevalence of CP was 2.5 (95% CI
2.4-2.7) per 1000. INTERPRETATION: To gain accurate estimates of prevalence rates
of CP, it is essential to combine data sources and to validate register data.
CI - (c) 2016 Mac Keith Press.

Langue : ANGLAIS