Article

Adolescence is a period of change and transition that may pose unique
challenges for young people with cerebral palsy (CP). We compared statements of
priorities, i.e. what adolescents (13-17) and youth (18-21) and their parents
would like to be able to do to enable greater activity and participation.
METHODS: Participants were 198 parents and 135 young people with CP (45% males)
from seven Children's Hospitals in the United States. The interviews were
structured using The Canadian Occupational Performance Measure. Priority
statements were categorised as Adult Tasks, Biology, Self-Identity or Physical
Activity. RESULTS: All parents identified more priorities for Biology and Adult
Tasks (p < 0.001). Adolescents identified the fewest priorities for Self-Identity
(p < 0.01). Youth identified, in descending order of frequency, priorities in
Adult Tasks, Biology, Self-Identity and Physical Activity (p < 0.05). In the
parent-young people dyads when disagreements occurred, Self-Identity issues were
identified more often by parents (p < 0.05) and priorities for Physical Activity
were identified more often by young people (p < 0.01). CONCLUSIONS: The shared
and differing priorities of parents and young people with CP may reflect
different roles, perceptions and experiences. The findings have implications for
healthcare professionals, providing a framework to compare and contrast the
priorities of young people and their parents.

Langue : ANGLAIS