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Responding to the challenges of parenting a child with cerebral palsy

WHITTINGHAM K; WEE AS; SANDERS M; BOYD R
DISABIL REHABIL , 2011, vol. 33, n° 17-18, p. 1557-1567
Doc n°: 154912
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.3109/09638288.2010.535090
Descripteurs : AJ23 - PARALYSIE CEREBRALE

PURPOSE: To explore the unique parenting challenges that parents of children with
cerebral palsy (CP) face and to explore the feasibility of a new parenting
intervention, Stepping Stones Triple P (SSTP), for this population. METHOD: Focus
groups were conducted with parents of children with CP
(n = 8) and health
professionals with experience in working with families of children with CP (n =
5). The discussion was transcribed verbatim and a descriptive thematic analysis
was performed. RESULTS: Parents stated that knowing whether a particular
behaviour is the result of CP or a behavioural issue is challenging. Parents were
also keen to promote communication, independence and socialisation in their
child. In addition, parents also discussed the challenges of parenting under time
pressure, with additional parenting tasks, under public scrutiny and with grief.
Both parents and professionals found SSTP to be a feasible and appropriate
intervention for parents of children with CP. CONCLUSIONS: The parents of
children with CP in this study faced a range of parenting challenges that may be
effectively targeted by a parenting intervention. In addition, parents and health
professionals found SSTP content acceptable and feasible for use with parents of
children with CP.

Langue : ANGLAIS

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