Article

PURPOSE: To explore important aspects of the benefits, important characteristics,
barriers to use and disadvantages of using ankle foot orthoses (AFOs) as seen by
people with Charcot Marie Tooth disease (CMT) and the orthotists who will fit and
supply them. METHOD: This qualitative study used the nominal group technique and
individual semi-structured interviews, according to participant preference and
ability to travel. Propositions were put to 15 participants (eight females) with
CMT regarding benefits, disadvantages, barriers to use and important
characteristics of ankle foot orthoses AFOs and regarding benefits and
disadvantages to seven orthotists. Priorities in these areas were ranked and a
thematic analysis of the free text was made separately by two observers and a
joint decision made of final themes. RESULTS: Fifteen people (eight females) with
CMT and seven orthotists participated. Users' themes concerned functional
mobility walking, pain/discomfort, choice of AFOs and associated footwear, custom
made design, use in practical situations and support for foot and ankle. They
noted that AFOs improved walking, but practical aspects of use and provision, as
well as consideration of cosmetic aspects, were frequently problematic.
Orthotists had similar themes, but with a difference in emphasis, that included
prevention of future complications, education regarding device limitations and
craftsmanship as a further theme. CONCLUSIONS: Users understood the potential
benefits of AFOs and could identify disadvantages which might be remedied, but
were frustrated by the difficulties in translating this into practice. Further
refinement of current orthoses and delivery of orthotic services may assist in
addressing these issues.
CI - (c) 2011 Informa UK, Ltd.

Langue : ANGLAIS