Article

PURPOSE: To compare patient-reported disability across three long-term
neurological conditions [motor neurone disease (MND), Guillain-Barre syndrome
(GBS) and multiple sclerosis (MS)] using the International Classification of
Functioning, Disability and Health (ICF). METHODS: A prospective cross-sectional
survey of Australian community-based persons with MND (n = 44). Their MND-related
problems were linked with ICF categories (second level) using open-ended
questionnaires and 'linkage rules' and compared to similar data collected for GBS
(n = 77) and MS (n = 101) participants. RESULTS: MND participants were older
(mean age 61 years, GBS 55, MS 49) with more males (66%, GBS 59%, MS 29%).
Seventy ICF categories in MND were identified (GBS 41, MS 63): "body function" 15
(GBS 7; MS 18); "body structure" 5 (GBS 3, MS 5); "activities and participation"
40 (GBS 25, MS 30); "environmental factors" 10 (GBS 6, MS 10). The main areas
linked in "activities and participation" were mobility, self care, general tasks
and demands, domestic life, interpersonal interactions and relationships, major
life areas and community, social and civic life; environmental factors included
products and technology, natural environment, support and relationships,
services, systems and policies. CONCLUSIONS: Comparison of three long-term
neurological conditions will assist with development of a core set of categories
to optimise consensus of care and communication amongst treating clinicians.

Langue : ANGLAIS