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Producing boundary-breaking texts on disability issues : the personal politics of collaboration

SWARTZ L; VAN DER MERWE L; BUCKLAND A; MCDOUGALL K
DISABIL REHABIL , 2012, vol. 34, n° 11-13, p. 951-958
Doc n°: 157812
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.3109/09638288.2011.624248

This article explores the reflection on a process of inter-collaborative
team work to produce a photographic book on caregivers' experiences of parenting
their disabled children. The team of authors consisted of members with diverse
backgrounds, including media studies, social science and photography. The purpose
of this article was to explore and gain a deeper understanding of the process of
boundary breaking, one which is important if we are to develop new knowledges and
new ways of thinking about disability. METHOD: In-depth interviews were conducted
with all contributors to the book. RESULTS: Themes emerging from the interviews
include the existence of different worlds, crossing boundaries, questions about
expertise, conflicting hopes and expectations, and the ethics of anonymity.
CONCLUSION: An account of the anxieties, the frustrations and rewarding aspects
of the collaboration is provided. We conclude that "us" and "them" categorization
permeates our thinking. It characterizes some of the most simplistic thinking in
the world of disability--able-bodied vs. disabled. In reality, there are no such
categories, we all reside along a highly differentiated continuum of changing
states of impairment and health. If we open ourselves up to this reality, we can
meet one another and draw on one another's knowledge and experience.

Langue : ANGLAIS

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