Article

This study explores the experiences and sense of burden of family carers
of survivors of malignant middle cerebral artery infarctions who had undergone
decompressive hemicraniectomy. To date, there have been no studies examining
carer outcomes among this unique population. This study, taken alongside an
already published study of survivor outcomes, provides a more holistic picture
with regard to sequelae within the sample. METHOD: Six family carers completed
the Sense of Competence Questionnaire and the Hospital Anxiety and Depression
Scale. These results were compared with existing normative data. Carers also
consented to a semi-structured interview. Interview data were examined using
thematic content analysis. Consistent with the mixed methods design, quantitative
and qualitative findings were integrated for further analysis. RESULTS: While
carers experienced many losses, their overall sense of burden was not outside
'Average' limits, nor did they experience clinically significant symptoms of
depression. All carers identified methods of coping with the demands of
caregiving. These included intrapersonal, interpersonal and practical strategies.
All carers apart from one were able to identify areas of post-traumatic growth.
CONCLUSION: Carers will benefit from information, support and care. In addition,
problem solving skills are essential in managing the myriad difficulties that
arise in the aftermath of stroke.

Langue : ANGLAIS