Article

OBJECTIVE: To report and synthesize the experiences, needs, and preferences of
carers of stroke survivors undergoing inpatient rehabilitation. DATA SOURCES:
MEDLINE, CINAHL, Embase, PsycINFO, and Web of Science were searched to March
2016. Reference lists of relevant publications were searched. No language
restrictions were applied. STUDY SELECTION: Eligible qualitative studies reported
the experiences of carers of stroke survivors who underwent inpatient
rehabilitation. The search yielded 3532 records; 93 full-text publications were
assessed for eligibility, and 34 documents (33 studies) were included.
Comprehensiveness of reporting was assessed using the Consolidated Criteria for
Reporting Qualitative Health Research framework. DATA EXTRACTION: Data on the
characteristics of included studies were independently extracted by 2 authors.
Differences in data extraction between authors were resolved through discussion
or by a third author. All text in studies' results and discussion sections were
extracted for analysis. DATA SYNTHESIS: Extracted texts were analyzed inductively
using thematic synthesis. Seven analytical themes were developed that related to
the carers' experiences, needs, and preferences: (1) overwhelmed with emotions;
(2) recognition as a stakeholder in recovery; (3) desire to be heard and
informed; (4) persisting for action and outcomes; (5) being legitimate clients;
(6) navigating an alien culture and environment; and (7) managing the transition
home. CONCLUSIONS: This systematic review provides new insights into the
experiences, needs, and preferences of carers of stroke survivors undergoing
inpatient rehabilitation. Carers experienced distress as they navigated a foreign
culture and environment without adequate communication and processes in place for
their inclusion. We recommend deliberate efforts to provide a more inclusive
environment that better supports and prepares carers for their new role.
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Langue : ANGLAIS