Article

Carers' experiences of caring for a stroke survivor were
explored, including reactions and changes in their lives. A
phenomenological approach was taken to the collection and analysis of data.
Semi-structured interviews lasting an average of 43 min were carried out with
nine informal carers in their own homes. All were married to someone who had
survived a stroke. RESULTS: An overarching theme emerged, entitled: 'lives turned
upside-down'. It took time for participants to understand the long-term impacts
of stroke. Carers experienced increased caring and domestic workloads alongside
reduced participation and altered expectations of life. They found emotional and
cognitive changes in their partners particularly distressing, and would have
valued more information and help with adjusting to the increased emotional,
physical and cognitive workload of caring. CONCLUSIONS: It is important to
support carers of people who have survived a stroke in adjusting to their changed
lifestyles. This may affect their quality of life as well as sustainability of
caring, and requires further research.

Langue : ANGLAIS