Article

Determining inclusion / exclusion criteria for cerebral palsy (CP)
surveillance is challenging. The aims of this paper were to (1) define
inclusion/exclusion criteria that have been adopted uniformly by surveillance
programmes and identify where consensus is still elusive, and (2) provide an
updated list of the consensus concerning CP inclusion/exclusion when a
syndrome/disorder is diagnosed. METHOD: Data were drawn from an international
survey of CP registers, the New South Wales CP Register (1993-2003), the Western
Australian CP Register (1975-2008), and the Surveillance of CP in Europe (SCPE;
1976-1998). An expert panel used a consensus building technique, which utilized
the SCPE 'decision tree' and the original 'What constitutes cerebral palsy?'
paper as frameworks. RESULTS: CP surveillance programmes agree on key clinical
criteria pertaining to the type, severity, and origin of motor disorder in CP.
Further work is warranted to reach agreement for (1) minimum age of survival and
maximum age of postneonatal brain injury, and (2) metabolic disorders with highly
variable clinical courses/responses to treatment. One hundred and ninety-seven
syndromes/disorders were reviewed and advice on their inclusion/exclusion is
provided. INTERPRETATION: What constitutes CP will continue to evolve as
diagnostics improve. Surveillance programmes throughout the world are committed
to addressing their differences regarding inclusion/exclusion criteria for the
umbrella term CP.
CI - (c) 2013 Mac Keith Press.

Langue : ANGLAIS