Article

OBJECTIVE: To investigate health-related quality of life (HRQOL) in a sample of
ethnically diverse children with traumatic brain injury (TBI). METHODS: Twenty
children with moderate-severe TBI and their parents were recruited from a TBI
clinic at a paediatric rehabilitation hospital. Children's self-reported HRQOL
was assessed with the Pediatric Quality of Life Inventory. Parents completed a
parallel proxy measure. RESULTS: Children reported significantly lower
Psychosocial HRQOL compared to their Total HRQOL, driven largely by low School
HRQOL scores. Compared to other paediatric populations, children with TBI
reported lower or equivalent HRQOL. Compared with children's self-reports,
parents reported even lower HRQOL for their children across primary domains, with
fair-to-moderate convergence between informants. CONCLUSIONS: Results provide
preliminary evidence that children who have suffered moderate-severe TBI
experience relatively poor HRQOL, particularly in the School domain. Limited
convergence between informants suggests that children and parents perceive HRQOL
differently, with parents reporting lower HRQOL.

Langue : ANGLAIS