Article

AIM: To compare the conceptual differences, internal consistency, and validity of
the Cerebral Palsy Quality of Life Questionnaire for Children (CP QOL-Child), the
Child Health Questionnaire (CHQ), and a European generic health-related quality
of life (HRQOL) questionnaire (10-domain version; KIDSCREEN-10) for children with
cerebral palsy (CP). METHOD: Two hundred and four primary caregivers (185 females
[91%], 19 males [9%]) of children with CP aged 4 to 12 years (mean 8 y 4 mo [SD
2.51]; 112 males [55%], 92 females [46%], Gross Motor Function Classification
System level I=18%, II=28%, III=14%, IV=11%, V=28%) provided demographic data and
completed the CP QOL-Child, CHQ, and KIDSCREEN-10. Fifty-four children with CP
aged 9 to 12 years completed the CP QOL-Child and KIDSCREEN-10. RESULTS: The
KIDSCREEN-10 and CP QOL-Child were developed to measure general HRQOL and
CP-specific QOL respectively, whereas the CHQ was developed to measure functional
health and well-being. In terms of internal consistency, KIDSCREEN-10 (Cronbach's
alpha=0.86) and CP QOL-Child (0.74-0.91) outperformed the CHQ (0.18-0.96). In
terms of validity, all instruments were moderately correlated. Floor and ceiling
effects, although minimal or not evident for KIDSCREEN-10 and CP QOL-Child
(1-4.9%), were apparent for CHQ (0.5-62.9%). INTERPRETATION: Conceptually and
psychometrically, KIDSCREEN-10 and CP QOL-Child performed more strongly than the
CHQ, for children with CP. The choice between these two instruments will depend
on the questions posed and outcomes sought by the researcher or clinician.

Langue : ANGLAIS