Article

PURPOSE: To summarize measurement instruments used to evaluate activity
limitations and participation restrictions in patients with chronic fatigue
syndrome (CFS) and review the psychometric properties of these instruments.
METHOD: General information of all included measurement instruments was
extracted. The methodological quality was evaluated using the COSMIN checklist.
Results of the measurement properties were rated based on the quality criteria of
Terwee et al. Finally, overall quality was defined per psychometric property and
measurement instrument by use of the quality criteria by Schellingerhout et al.
RESULTS: A total of 68 articles were identified of which eight evaluated the
psychometric properties of a measurement instrument assessing activity
limitations and participation restrictions. One disease-specific and 37 generic
measurement instruments were found. Limited evidence was found for the
psychometric properties and clinical usability of these instruments. However, the
CFS-activities and participation questionnaire (APQ) is a disease-specific
instrument with moderate content and construct validity. CONCLUSION:
The psychometric properties of the reviewed measurement instruments to evaluate
activity limitations and participation restrictions are not sufficiently
evaluated. Future research is needed to evaluate the psychometric properties of
the measurement instruments, including the other properties of the CFS-APQ. If it
is necessary to use a measurement instrument, the CFS-APQ is recommended.
IMPLICATIONS FOR REHABILITATION: Chronic fatigue syndrome (CFS). Chronic fatigue
syndrome causes activity limitations and participation restrictions in one or
more areas of life. Standardized, reliable and valid measurement instruments are
necessary to identify these limitations and restrictions. Currently, no
measurement instrument is sufficiently evaluated with persons with CFS. If a
measurement instrument is needed to identify activity limitations and
participation restrictions with persons with CFS, it is recommended to use the CFS-APQ in clinical practice and scientific research.

Langue : ANGLAIS