Article

AIM: To assess the psychological well-being and social integration of adults with
craniopharyngioma diagnosed in childhood. METHOD:
A cross-sectional study of a
nationwide cohort of young adults with craniopharyngioma in Germany was
performed. A structured questionnaire covered the sociodemographic, clinical
data, and subjective effects of the condition on social integration.
Psychological well-being was assessed using the Hospital Anxiety and Depression
Scale (HADS). Results were compared to young adults with type 1 diabetes mellitus
(T1DM). RESULTS: The study included 59 participants (29 females, 30 males; mean
age 25y 2mo [SD 5y 10mo]), mean age at first surgery 10y 2mo [SD 3y 7mo].
Compared to the T1DM group, significantly more young people with
craniopharyngioma aged 25 to 35 years lived at their parents' homes
(craniopharyngioma 43.34%; T1DM 13.7%; chi2 =4.14, p=0.049), and fewer lived in a
relationship (craniopharyngioma 8.69%; T1DM 54.7%; chi2 =15.74, p<0.001). The
HADS revealed a score for depression above the cut-off in 20.69 per cent of young
adults with craniopharyngioma and in 6 per cent of young adults with T1DM (chi2
=13.42, p<0.001). INTERPRETATION: Young adults with craniopharyngioma reported
subjective disadvantages in professional and social integration. Further, they
presented with reduced well-being and increased depression rates. Better
psychosocial support and self-management education might reduce the long-term
burden of the disease.
CI - (c) 2017 Mac Keith Press.

Langue : ANGLAIS