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Adults with cerebral palsy : a workshop to define the challenges of treating and
preventing secondary musculoskeletal and neuromuscular complications in this rapidly growing population

TOSI LL; MAHER MAXWELL N; MOORE DW; GOLDSTEIN M; AISEN ML
DEV MED CHILD NEUROL , 2009, vol. 51, n° SUPPL. 4, p. 2-11
Doc n°: 143069
Localisation : Documentation IRR

D.O.I. : http://www.doi.org/10.1111/j.1469-8749.2009.03462.x
Descripteurs : AJ23 - PARALYSIE CEREBRALE

Although the neurological injury associated with cerebral palsy (CP) is
non-progressive, adults with the disorder often develop musculoskeletal and
neurological symptoms, such as severe pain, chronic fatigue, and a premature
decline in mobility and function, as they age. Little is known about how to
manage, much less prevent, these symptoms. This paper summarizes the findings of
a multi-disciplinary workshop, sponsored by the Cerebral Palsy International
Research Foundation, the American Academy for Cerebral Palsy and Developmental
Medicine, and Reaching for the Stars, convened to review current knowledge and
begin to develop a blueprint for future research.
The goals of the workshop were
to (1) define the current incidence and prevalence of CP, (2) review the known
complications for persons aging with CP, (3) review current understanding of
physiological processes that may contribute to loss of function and premature
aging in CP, (4) evaluate current treatment interventions in terms of long-term
outcomes, (5) identify cutting-edge technologies in neurorehabilitation that may
help prevent or treat the effects of accelerated aging for persons diagnosed with
CP, and (6) identify strategies to ensure that individuals with CP receive
evidence-based care as they transition from pediatric to adult-care services.

Langue : ANGLAIS

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