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Spinal Cord Injury Community Survey : Understanding the Needs of Canadians with SCI

NOREAU L; NOONAN VK; COBB J; LEBLOND J; DUMONT FS
TOP SPINAL CORD INJ REHABIL , 2014, vol. 20, n° 4, p. 265-276
Doc n°: 172294
Localisation : Centre de Réadaptation de Lay St Christophe

D.O.I. : http://dx.doi.org/DOI:10.1310/sci2004-265
Descripteurs : AE21 - ORIGINE TRAUMATIQUE, JF - QUALITE DE VIE , JL1 - HANDICAP ET SOCIETE

There is a lack of literature regarding service needs of people with
SCI living in the community. Better assessment of expressed and met and unmet
needs would help in the development of effective service delivery. OBJECTIVE:
From a national SCI Community Survey in Canada, the aim was to identify the most
critical service needs of people living in the community at least 1 year post
discharge from rehabilitation and the support they received to meet their needs.
METHOD: Data were collected mainly through a secure Web site and encompassed
demographics, personal and household income, an SCI severity measure, and an SCI
community needs measure containing information on 13 SCI-related needs. RESULTS:
A total of 1,549 persons with SCI (traumatic lesion, n = 1,137; nontraumatic
lesion, n = 412) across Canada completed the survey. Most critical needs for
community integration were expressed by a substantial proportion of survey
participants, but significantly more expressed and met needs were reported by
persons with a traumatic than a nontraumatic lesion. Personal and environmental
characteristics influenced the probability of expressing and meeting needs (eg,
severity of injury and household income). Help and support to meet expressed
needs were received from government agencies, community organizations, and
friends or family. CONCLUSION: Better assessment of expressed and met or unmet
needs for services remains a challenge but will serve as a tool to optimize
service delivery in the community. Environmental barriers to services,
particularly the process of getting needs met and associated costs, remain an
issue that requires a reconsideration of some aspects of access to services.

Langue : ANGLAIS

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