Article

This cross-sectional study aimed to determine the prevalence, frequency, and
intensity of parent-reported pain among non-verbal children with cerebral palsy
(CP) and explore associations with medical, demographic, and parental
psychosocial factors. METHOD: Participants were parents of non-verbal outpatients
(aged 2-20y) with CP at University of Malaya Medical Centre, Kuala Lumpur and two
community centres. Parents answered the Caregiver Priorities and Child Health
Index of Life with Disabilities Questionnaire and a pro forma regarding
parent-reported frequency and intensity of pain during the preceding 4 weeks.
Parental psychosocial well-being was assessed via the Depression, Anxiety and
Stress Scale and Multidimensional Scale of Perceived Social Support. RESULTS: The
response rate was 94%; 104 children (54 males, 50 females) were studied. The
majority (51%) were in Gross Motor Function Classification System level V and 65%
had spastic quadriplegia. Parents reported pain in 65%, intense pain in 17%, and
daily pain in 28%. Intense and frequent pain was reported during physiotherapy.
More intense pain was reported in older children (p=0.016) and those with spastic
quadriplegia (p=0.020). INTERPRETATION: Caregivers of non-verbal children with CP
report a high frequency of pain. Pain intensity is associated with patient
factors but not parental psychosocial factors.
CI - (c) 2015 Mac Keith Press.

Langue : ANGLAIS