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Parental social consequences of having a child with cerebral palsy in Denmark

MICHELSEN SI; FLACHS EM; MADSEN M; ULDALL P
DEV MED CHILD NEUROL , 2015, vol. 57, n° 8, p. 768-775
Doc n°: 176088
Localisation : Documentation IRR

D.O.I. : http://dx.doi.org/DOI:10.1111/dmcn.12719
Descripteurs : AJ23 - PARALYSIE CEREBRALE, JL13 - HANDICAP ET FAMILLE

AIM: To analyse the social situation of parents who have a child with cerebral
palsy (CP). METHOD: This was a population-based longitudinal study with linkage
to public registries. Parents of children with CP (n=3671) identified in the
Danish CP Registry were compared with 17,983 parents of children without CP.
Employment, income, cohabitation status, and presence of additional children were
factors analysed during a follow-up period of 28 years. We followed parents from
before their child was born and up to the age of 43 years of the child. RESULTS:
Mothers of children with CP under the age of 10 were less often employed: odds
ratio [OR] of employment at age 5y 0.45 (95% confidence interval [CI] 0.36-0.57),
but only 11% left the labour market. Mothers of children without CP had higher
incomes: ratio full-time working 1.11 (95% CI 1.07-1.15). The risk of not living
together was not increased among parents of children with CP: at age 5 years OR
1.04 (95% CI 0.84-1.28). Parents of children with CP as the first born postponed
or more seldom had subsequent children: hazard ratio [HR] 0.75 (95% CI
0.68-0.83). INTERPRETATION: The Danish welfare system seems to have succeeded in
keeping parents in the labour market and living together with their child.
Special attention needs to be paid to the financial situation of families with children with CP under 10 years of age.
CI - (c) 2015 Mac Keith Press.
- Danemark

Langue : ANGLAIS

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