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Quality of life in hereditary neuromuscular diseases
PICCININNI M; FALSINI C; PIZZI A
ACTA NEUROL SCAND , 2004, vol. 109, n° 2, p. 113-119 Doc n°: 112037 Localisation : Bibliothèque Universitaire de Médecine de Nancy Descripteurs : AB31 - DYSTROPHIES MUSCULAIRES, JF - QUALITE DE VIE The aim of the study is to evaluate different aspects in the quality of life (QoL) in a group of patients affected by hereditary neuromuscular disease. Material and methods - Forty-five consecutive outpatients (mean age 49.46 +/- 17.07 years, range 19-80 years) with hereditary neuromuscular disease underwent the Brooke scale and functional independent measure to assess the functional status, the Sickness Impact Profile (SIP) and Psychological General Well-Being Index (PGWBI), as a measure of the QoL. Results and conclusions - All patients had a poor QoL assessment with SIP. The higher disability level was Langue : ANGLAIS |
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