Article

The National Institute of Neurologic Disorders and Stroke, Defense Centers of
Excellence for Psychological Health and Traumatic Brain Injury, National
Institute on Disability and Rehabilitation Research, and Defense and Veterans
Brain Injury Center jointly supported an effort to develop common data elements
(CDEs, ie, consensus-based content domains of importance and recommended ways to
measure them) for research on traumatic brain injury and psychological health.
The authors served as participants in this effort as well as editors of the
resulting articles. This article describes the current status of this multiagency
endeavor, the obstacles encountered, and possible directions for future
development. Challenges that occurred within the working groups that developed
the CDE recommendations and similarities and differences among the articles that
describe those recommendations were reviewed. Across all of the working groups,
there were challenges in striking a balance between specificity in
recommendations to researchers and the need to tailor the selection of variables
to specific study aims. The domains addressed by the different working groups
varied in the research available to guide the selection of important content
areas to be measured and the specific tools for measuring them. The working
groups also addressed this challenge in somewhat different ways. The CDE effort
must enhance consensus among researchers with similar interests while not
stifling innovation and scientific rigor. This will require regular updating of
the recommendations and may benefit from more standardized criteria for the
selection of important content areas and measurement tools across domains.
CI - Copyright (c) 2010 American Congress of Rehabilitation Medicine. Published by
Elsevier Inc. All rights reserved.

Langue : ANGLAIS